THE AUSTRALIAN
NPC DISEASE FOUNDATION
The Australian NPC Disease Foundation is a patient advocacy organisation that is dedicated to building hope for those impacted by Niemann-Pick disease type C (NPC). As a rare and debilitating genetic disorder, NPC is a life-changing diagnosis that can leave families feeling confused, helpless, and isolated.
Founded by a mother of two children diagnosed with NPC, the organisation is run entirely by volunteers who understand the challenges and emotions that come with this diagnosis. The foundation serves as a support system for those in need, both emotionally and financially, providing a sense of community for those who may feel forgotten.
In addition to providing support for families, the foundation is also a vital part of a global network that advocates for clinical trials in Australia and is a major contributor to the only research currently being conducted in Australia to slow or halt the progression of this deadly disease.
100% powered by volunteers
We chose to support the little guys because we know together, we can make a difference.
If you or someone you know has been impacted by NPC, the Australian NPC Disease Foundation is here to provide hope and support. To learn more about NPC in Australia or to find out how you can help, visit their website or contact them.
